Introducing the Patient-Centered Outcomes Research Data Repository (PCODR)

The Patient-Centered Outcomes Research Data Repository (PCODR), supported by funding from the Patient-Centered Outcomes Research Institute (PCORI), stands as a pivotal hub for the exploration, retrieval, and examination of comparative clinical effectiveness research (CER) data derived from PCORI-funded studies. This comprehensive repository continually accumulates data from an expanding array of patient-focused CER investigations, spanning diverse medical domains such as lower back pain, stroke, cardiovascular conditions, and mental health concerns. Wake Forest participated in several of the studies currently included in the data repository, including “Aspirin Dosing: A Patient-Centric Trial Assessing Benefits and Long-term Effectiveness (ADAPTABLE)”, the “Healthcare Worker Exposure Response and Outcomes of Hydroxychloroquine Trial (HERO-HCQ Trial)”, and the “Comprehensive Post-Acute Stroke Services (COMPASS) Study”.

Within the PCODR, researchers can delve into the underlying data sets alongside essential documentation including study protocols, metadata, and analytical codes, all in accordance with participant-informed consent. Data in the PCODR are deidentified in accordance with federal HIPAA regulations, and requests for data are evaluated for scientific merit by an independent review committee. By facilitating open access to this electronic reservoir of data, PCORI actively enhances the research landscape, particularly in the realm of patient-centered CER.

The PCODR undergoes regular updates with fresh data, ensuring its relevance and utility for ongoing scientific inquiry. For further details and to access this repository, please visit PCORI’s Data Sharing Webpage and discover how this initiative is fostering innovation and advancement in healthcare research.

To learn more about our involvement with PCORI through our participation in the Stakeholders, Technology, and Research (STAR) CRN email or visit the Office of Informatics website.